Open Data for Health

Open Data for Health

Open Data Strategic Programme

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The aim of Open Data is twofold; on the one hand facilitating transparency of the Public Sector and on the other providing a valuable resource that can drive innovation. The availability of Open Data can empower citizens and support clinicians, care providers, and researchers make better decisions, spur new innovations and identify efficiencies while ensuring that personal data remains confidential.

Richard Corbridge, CIO HSE

The eHealth Ireland Open Data Portal

The eHealth Ireland Open Data Portal, http://data.ehealthireland.ie/, makes it easy to find and access data from across the Irish Health Sector. This includes information on available health services, statistics on hospital cases and national waiting lists, and performance of new digital initiatives, such as eReferrals.

The publication of Irish Public-Sector data in open, free and reusable formats is recognised as a key element of the Public Service Reform agenda. Through the National and Regional Open Data Portals, citizens can access raw Public-Sector data, providing insights into the operation of public organisations and services.

 

opendata2What Open Health Data is available?

There are over 300 datasets currently available on data.ehealthireland.ie. This includes valuable data from the Hospital In-Patient Enquiry Scheme (HIPE), a system that collects information on hospital day cases and in-patients in Ireland, and from the National Perinatal Reporting System (NPRS), which provides national statistics on perinatal events, in particular data on pregnancy outcomes, perinatal mortality and important aspects of perinatal care. This Open Data provides insights into key areas of the health service and can be used for oversight, analysis of outcomes and informed decision-making.

The portal also provides a number of datasets on health services, including health centres, hospitals and GPs. Publishing Service Directory information as Open Data is important, so that people can understand the services that are available, where they are located and how they can avail of them.

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The National Treatment Purchase Fund (NTPF) is responsible for the collection, collation and validation of Inpatient, Day Case and Outpatient waiting lists. The NTPF publishes monthly reports as Open Data that show the total numbers waiting for Inpatient and Day Case treatment in each Hospital/Group and Specialty, as well as the total number of patients waiting for a first appointment at a consultant-led Outpatient clinic. The availability of NTPF data is essential to understand current healthcare practices and can be used by healthcare practitioners, management and the general public.

 

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The Primary Care Reimbursement Service (PCRS) is responsible for making payments to healthcare professionals, like doctors, dentists and pharmacists, for the free or reduced costs services they provide to the public. The PCRS are publishing a number of datasets as Open Data, including the number persons with Medical / GP Visit card eligibility, the number of Optical claims submitted to PCRS, and the number of PCRS contractors who provide services to the HSE.

The HealthLink General Referrals datasets show the number of e-referrals per hospital, department & year. Using the e-referral solution, a GP can submit a referral electronically directly from their practice management system to the hospital in question using the HIQA approved referral form and immediately receive an acknowledgement confirming receipt of same.

 

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The eHealth Ireland Open Data Portal is built using the Open Source CKAN platform. Full API access to the data is available to the portal. API documentation is available here.

Open Health Data Principles

The following Open Health Data Principles support the HSE’s vision to ‘improve patient care, empower choice and support innovation through open access to HSE data, while protecting patients’ personal data’.

  • Data is a valuable asset to improve healthcare delivery and planning
  • Personal data is protected under data protection legislation
  • Open Health Data is proactively published
  • Open Health Data is usable by all
  • Open Health Data is of high quality
  • Reuses of Open Health Data will be supported
  • Researchers and other external stakeholders have access to relevant data under controlled circumstances
  • People can access data about themselves and how it is being used

 

Open Health Data Strategy & Policy

The purpose of this Open Health Data Governance Strategy is to optimise the value of Open Data published by the HSE so that the Open Health Data Vision is achieved. The Open Health Data Governance Strategy ensures the consistent and reliable preparation, publication and maintenance of Open Health Data across all arms of the HSE, through a standard set of policies, best practices, and structured processes.

The Open Health Data Policy creates an overarching framework for the accessibility and availability of Open Data within the Irish Health Sector. The Open Health Data Policy ensures that a consistent approach is taken for the release of Open Data across the HSE, aligned with National Guidelines and International Best Practice.

Contact

If you have any questions or comments about the eHealth Ireland Open Data Portal, please contact info@data.ehealthireland.ie