Consuming and producing information is a core occupation for citizens in Ireland, but often information collected is difficult to analyse and interpret. Access to and analysis of health information is important. It provides opportunities to gain valuable insights into how we can deliver safe effective and equitable health for all, build knowledge on health and wellbeing, and inform planning of our health services
Established in 2015, the Information Architecture (IA) function is creating a standards based platform for the sharing of Irish Citizens health and social care information. We are building an information structure with detailed definitions of information to support the effective processing of information (clinical and business) within eHealth Ireland. A core building block of this information structure is a National Data Dictionary which will provide a single source of ‘truth’ accessible to all individuals in Ireland.
Our core business revolves around metadata standardisation, the national data dictionary, metadata modelling, glossaries, catalogues, metadata governance and structured content publication.
To do this we are now collecting information about data and this is called metadata. The National Data Dictionary can act as a reference point for approved information.
What is metadata?
Metadata often described as data about other data, derives from the Greek word meaning nature of a higher order or more fundamental kind. The metadata organises the national data dictionary to help us consider and compare the information we collect for future interpretation and planning.
Current Projects for the Information Architecture Data Dictionary programme include;
- OpenNCP: The Connecting Europe Facility for eHealth Digital Service Infrastructure in accordance with EU Directive 2011/24/EU is scheduled to go live in March 2020. The Open NCP project supports the transfer of Irish citizen’s data relating to the Summary Care Record (SCR) and Electronic Prescribing (ePrescribing) for unscheduled care. The goal is to enhance the continuity of care for individual citizens using a secure patient consent service and provide safe and high-quality transfer of healthcare information within EU member states.
Further information is available from https://ec.europa.eu/inea/en/connecting-europe-facility or contact Mr. Eamon Coyne email@example.com
Various clinical terminologies and classification standards such as SNOMED CT and ICD10 are currently in use in Ireland . Such code sets already contain clinical definitions for clarity of uptake and use in health and social care delivery. We will include clinical metadata in the data dictionary so this data can act as a reference point for sharing approved information between service providers.
When defining your business metadata, it is important to start to think about stewardship. A key part of the process in the journey towards standardisation of Business metadata is information stewardship.
Business functions need to consider who has responsibility for deciding the enterprise definition for a term. We will include agreed business metadata in the data dictionary so that this information can be integrated into health and social care delivery in accordance with eHealth Ireland.
Figure 1 below provides an abstract summary view of core elements within the data dictionary and the overarching relationships between concepts and required message details to achieve integrated care . A link to our ISO-11179 aligned template for clinical and business terms is also included in links and reports below.
Figure 1 Abstract view of data dictionary and Models of Use adapted from ref ISO 20022
Links and Reports
To read more about the work of IA function please follow the following links and reports.
- National Data Dictionary Metadata Registry Framework Briefing Paper
- ISO-11179 aligned template version 1
- HISI Enterprise Architecture (EA) Workshop – see main HISI Web Site (https://www.hisi.ie/conference)
For further information contact:
Martin Tully firstname.lastname@example.org (Information Architecture Programme Lead)
Dr Pamela Hussey email@example.com (Academic Link)